Another example of how backwards the US healthcare system is:
When our family moved from Texas to Florida in 2004, we'd just had Devin evaluated by "Bright Start," Texas' early intervention program. They faxed his results on for us and we were assured that we'd be seen ASAP. We were even given the name of a case worker. Within a couple weeks of arrival, I called this woman, fully expecting to be told that we'd wait a month or two...something I had NO problem with at the time. I was shocked when she informed me that I'd need a MEDICAL diagnosis before Florida's EI program could even look at D.
Trust me, it gets worse...I'm not getting on EI in Florida for this one even though I still believe this woman was wrong in what she told me.
DH & I found Devin a pediatrician, whom we all adored, especially Devin. (Big deal since he's not a fan of doctors at all!) Dr. K was an amazing advocate for Devin, I wish we could have packed her up and brought her to WI with us the next year. Anyway...she gave us referrals to speech therapists, behavioral psychologists/psychiatrists, neurologist...the works. We saw all except the speech therapist. The neuro and the BPs said, "Oh, he's just young. He'll outgrow it all." The speech therapist is where the insurance issue comes into play.
Here's how it worked:
1) Our insurance covered speech therapy office visits.
2) The speech therapist accepted our insurance.
Sounds great, right?
3) The speech therapist (the only one available on our insurance) only did home visits.
4) Our insurance didn't cover home visits.
See the dilemma??
We went dizzy with all the circles we ran in to figure this out. We only lived in Florida for 15 months...Devin
never did get evaluated by EI because we never got a diagnosis of any sort. Yes, his pedi could have given one, but she admitted to not feeling qualified for THAT aspect of his health care. At the same time, she did agree that something was wrong.
We moved to Wisconsin, had D evaluated (by the school district since he was only a month off from being three by this time) and in a special education preschool within weeks. We had official diagnoses before Christmas (we moved here in late September), all because our health insurance didn't have its head up its arse. The BPs and neuro who said nothing was wrong received letters from me with copies of those diagnoses...PDD-NOS (he actually has Asperger's, but it's listed as PDD-NOS for the time being), generalized anxiety disorder, oppositional defiance disorder, obsessive compulsive disorder, sensory integration/processing disorder, hyperlexia, and non-verbal learning disorder. (ADHD, minus the AD was recently added.)
Honestly, no system is or can be perfect. The US system though, is truly one of the WORST so far as insurance goes. The health care itself is worthwhile, it's just the ability to
get that care that needs revamping.
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