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emilyscout
07-11-2009, 06:08 PM
Hi all. Well to say last week was an emotional one doesn't even come close to capturing the actual feelings. On tuesday I had a regular OB checkup. No biggie. I went without my husband since he had to work. When the OB performed the ultrasound I saw my baby right away. Pleased to see the heartbeat flickering away. However the room closed in on me when my OB uttered the words, "I'm so sorry emily." The baby has a very large nuchal fold called a cystic hygroma which in and of itself is a great concern for chromosomal abnormalities. But the baby also has an omphalocele. Which is basically the intestines did not curve back inside the body cavity like they should at this age. Its likely the intestine will continue to develop on the outside. This is fixable, but combined with the cystic hygroma increased the odds that the baby has a chromosomal abnormality like trisomy 13 or 18. The very next morning we went in to have a cvs test done. It was not pleasant(as they went through the stomach and did not get enough of a sample, so they went a second time through the cervix) but worth enduring to get an answer. We got a call on Friday afternoon with the prelim results. All chromosomes are normal and we're having a boy. This is especially good news since they know without a doubt they were analyzing baby's dna and not mine. Prelim results at my hospital have a 90% concordance rate with the final results. So we wait for final results roughly by next Friday. If those come back normal my OB said she hopes that when we go the following week for the followup u/s that the baby is perfectly normal and the intestines have fixed themselves. I almost cried when she said it as I thought the intestine issue was absolutely set in stone as a problem. But I guess anything can happen. But even if the intestines do not sort themselves out it is still fixable. And we are at one of the best hospitals in Boston for this kind of situation. My OB is high risk already, so I won't change hands. And they have a whole host of pediatric surgeons that are well versed in operating on babies with ALL kinds of fetal anomalies. I feel awesome about the wonderful care we're recieving. Truly, God is working in this situation and I know that no matter what happens there is great good in all of this. I ask you to pray for our little boy. Pray that the final results correspond with the preliminary results. And pray that when we see him next on the u/s that he is completely perfect in every single way. Thank you so much.

kresta
07-11-2009, 06:14 PM
Oh my goodness, I can't even imagine what you've been through in the last week. I'm so glad you're getting such awesome care. Will definitely be praying!

scrappurple
07-11-2009, 06:16 PM
Wow ... Lord Jeus heal this little baby and give mommy & daddy your peace. I'll keep praying .. :)

kscwgirl
07-11-2009, 06:18 PM
I can't even imagine Emily. (((((((((((Hugs)))))))))))))))) and prayers for you.

lauren grier
07-11-2009, 06:25 PM
(((all my love and strength)))

Julie Billingsley
07-11-2009, 06:36 PM
oh my, I will certainly be praying for the healing that your baby needs. Lots of hugs,

DawnMarch
07-11-2009, 06:36 PM
Sending prayers (and hugs!)

bderby
07-11-2009, 06:36 PM
Emily, I am so sorry that you are facing this, but know from experience that God can and does work through difficult situations. Many many many prayers!

marnel
07-11-2009, 06:44 PM
Oh Emily, Big hugs and I'll be thinking positive thoughts for all of you.

Joan
07-11-2009, 06:54 PM
I'm so sorry, I can't even imagine! Huge {{{{HUGS}}}} and lots of positive thoughts being sent your way!

jessica31876
07-11-2009, 06:59 PM
Im so sorry!! I totally know what you are experiencing though cause I went through something really similar with my middle child. It was nervewracking and I cried alot during that time. Ill keep your baby in my thoughts and hope everything is ok with this new test!!

Misty Cato
07-11-2009, 07:06 PM
I said a prayer for your sweet boy. Prayers for peace to you as well Emily.

Sharon Kay
07-11-2009, 07:07 PM
Oh my goodness!! {{hugs}} and I hope everything heals ok and you get good news!

LenaGardner
07-11-2009, 07:18 PM
Emily, we are praying for you!

KristinCB
07-11-2009, 07:20 PM
Keeping you and your baby in my thoughts and prayers!

dana
07-11-2009, 07:27 PM
you know i'm thinking of you emily ... take care!

WalkersMommy
07-11-2009, 07:32 PM
I'll be praying for you and your family Emily! ((big hugs!!))

emmasmommy
07-11-2009, 07:34 PM
Many positive thoughts and prayers being sent your way!

nikkiARNGwife
07-11-2009, 07:35 PM
Sending up prayers for you and baby!

Jennifer
07-11-2009, 07:57 PM
Many many prayers for your family and this baby!!! ((HUGS))

MissKim
07-11-2009, 08:00 PM
Praying for you.

SmallMoments
07-11-2009, 08:02 PM
Wow Emily. Your attitude in just that post alone is amazing. Praying God continues to give you a peace with the situation and for your sweet little boy's health. ((hugs))

dabittymama
07-11-2009, 08:07 PM
Sending prayers to the Big Man, His hand is mighty to heal!!!

pbumbaca
07-11-2009, 08:39 PM
I've been thinking of you Emily! I will continue to keep you and the little guy in my thoughts and prayers!

Emmy
07-11-2009, 08:42 PM
I'll be praying for you Emily. How many weeks are you?

lisabranka
07-11-2009, 08:50 PM
Praying for you and your little one.

TeriBeary
07-11-2009, 09:05 PM
Hugs and PPT for you and your family.

hollyxann
07-11-2009, 09:21 PM
My prayers are with you and your family.

emilyscout
07-11-2009, 09:21 PM
Thank you all so much everyone. I will be 13 weeks on Tuesday.

~Julie~
07-11-2009, 09:24 PM
{{Hugs}} I will keep you in my thoughts and prayers.

jorgies5
07-11-2009, 09:27 PM
Prayers for you and your baby! Sounds like you are in good hands.

Leah
07-11-2009, 09:38 PM
That would be incredibly scary. My thoughts and prayers will be with you.

Robin Carlton
07-11-2009, 09:41 PM
Emily, you have an army of prayers and positive thoughts coming out to you from all of us. Please keep us posted on your little guy as you learn more.

Robin

Teresa
07-11-2009, 09:42 PM
Sending lots of prayers up for you and your little man. So sorry you're going through this...happy to hear about the good results so far, though. Hang in there! :)

cindys732003
07-11-2009, 09:42 PM
OH, I am so sorry you are going through such a scare right now. Sending you P&PTs that all is okay with your little boy...hugs and please keep us updated!!

Jenn Barrette
07-11-2009, 09:58 PM
Huge hugs and positive thoughts coming your way hun!

ZaCola3
07-11-2009, 10:00 PM
I am praying Emily!

crystalbella77
07-11-2009, 10:10 PM
oh goodness Emily!!!!! I am sooo sorry! I cannot even imagine what you are going through and how hard the last week has been!!! BIG HUGS and lots of prayers coming your way!

suze
07-11-2009, 10:23 PM
(((prayers to you and your baby)))

meganmecrazy
07-11-2009, 11:33 PM
I will be praying for you and your baby. (((((HUGS)))))

SeattleSheri
07-12-2009, 12:48 AM
I'm so sorry, i can only imagine how stressful this is. I'm so happy to hear that the preliminary results show no genetic abnormalities. Waiting is just the worst. I will keep you in my thoughts and prayers. Please keep us posted when you can {{{HUGS}}}

aly321
07-12-2009, 01:15 AM
Emily... my thoughts and prayers are with you and your little boy. I am so sorry to hear that you are having these struggles. We have a friend whose little girl was born with her intestines outside her body. She had multiple surgeries and was in the NICU for awhile, but is perfectly healthy and normal now. Even if you know it is fixable, I am sure that this is NOT easy to think about or go through! {{{HUGS}}} for you! I am praying for the best!

RatherBScrappin
07-12-2009, 01:18 AM
Emily ~ my thoughts and prayers are with you and your baby that everything turns out okay...hang in there and keep us posted!

tuneskids
07-12-2009, 01:28 AM
((hugs)) Emily, I will keep you in my thoughts!

mormishmom
07-12-2009, 01:34 AM
My prayers are with you and your little baby boy.

livelys
07-12-2009, 03:07 AM
Lots of love and lots of positive thoughts to all of you xxx

FireWolf
07-12-2009, 04:15 AM
I wish you much strength. Lots f positive thoughts coming your way.

NettieB
07-12-2009, 04:17 AM
Emily - a hug, and will be praying for you and your sweet boy - may you both feel wrapped in grace and peace

lovely1m
07-12-2009, 07:44 AM
Oh, my goodness, what an emotional rollarcoaster you have been on. Hugs. Please keep us updated.

joelsgirl
07-12-2009, 08:17 AM
I'll be praying for you and your sweet baby!

Nathalie
07-12-2009, 06:27 PM
You and your baby boy are in my thoughts!

juliemarie
07-12-2009, 07:22 PM
Your whole family is in my prayers

Cheryl Ashcraft
07-12-2009, 08:54 PM
You know I've been praying for you, just wanted you to know here as well. Big hugs to you.

sannajeannine
07-12-2009, 09:42 PM
Sending prayers and (((hugs))) your way!!!

Nonna2Dreja
07-12-2009, 10:02 PM
Emily, I will keep you, your family and your precious baby boy in my thoughts and prayers....

kim21673
07-12-2009, 11:16 PM
My thoughts and prayers are with you and your unborn baby boy. I hope everything comes back perfect next week. ((HUGS))

lovemy4kids
07-13-2009, 01:45 AM
What a scary and stressful time! Saying a prayer for you and your little one.

ScrappieJackie
07-13-2009, 02:28 AM
Em sweet thing...you know you are in my thoughts and prayers...glad to hear the updated news and pray that everything heals by next week...hang in there...sending big time hugs and prayers~!!!!

Melissa Bennett
07-13-2009, 10:50 AM
Saying lots of prayers and sending lot of (((((((((((((HUGS))))))))))).

nun69
07-13-2009, 11:51 AM
BIG HUGS and I will keep you guys in my thoughts...my niece was born with the intestine abnormality and is probably one of the wildest 3 y/o olds I know...she is perfectly healthy, ao I will be sending good vibes your way for your little one as well~

sczos911
07-13-2009, 11:54 AM
I am keeping you all in my thoughts and prayers.

LibbysMommy
07-13-2009, 12:00 PM
(((hugs))) and prayers Emily!!

Lauren Reid
07-13-2009, 01:25 PM
sending healthy vibes baby's way! are you delivering at Mass General? That's where my OB was and where i delivered the twins... they were WONDERFUL!

stay strong!

xo

stacey99
07-13-2009, 02:55 PM
sending {{{hugs}}} and prayers!

Keely~B
07-13-2009, 03:15 PM
Your family will be in my thoughts. Hugs!

emilyscout
07-13-2009, 05:39 PM
close, my OB is at BIDMC. I love every doctor I have ever gone to see there. The communication between my OB and gastroenterologist has been fabulous!