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Old 10-20-2008, 10:14 PM
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LenaGardner LenaGardner is offline
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Okay, that helps my memory some. I think it was 6, but they went ahead and made the referral when he had only 4 spots, since it was certain that his father had it. In my limited knowledge of NF1, it just means he'll have to receive extra special attention...a few extra specialist appointments every year, until around puberty when the symptoms become more pronounced. I know Tab takes her eldest to a geneticist as well for an unrelated condition so this isn't uncharted water for her but scary nonetheless. I hope Aja doesn't have it but if she does, there is great medical care for NF1. I've put a call into Tabby but she gets up early to put the older children on the bus so I'm pretty sure she's out for the count already tongiht. I left her a voicemail though to see the thread
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