Kim.. I'm off to sign the petition. I think this is a wonderful way to bring attention to the disease/syndrome and to honor the memory of your son. There are so many diseases/syndromes that take the lives of children I (and the public) have never heard of.. including the placental disease called Twin to Twin Transfusion Syndrome (*links on my blog with info if anyone is interested*) that took the life of my identical twin boys @ 27 weeks in 2004. There are organizations/foundations raising money for research, but it seems if someone famous hasn't dealt with this syndrome, then it doesn't reach the media and public like it should. *Sorry for the personal rant*
I wish you lots of luck in reaching your goal of 50,000 signatures.
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