Update on my husband...pretty good news

[jessica31876]

I have not gotten around to updating my blog with what has happened yet but wanted to share with everyone here because ya'll have been so supportive!!

He got all tubes taken out except the trach tube and his IV. He can eat and talk now. He cannot drink yet which is kinda weird cause I would think swallowing solids is harder then swallowing liquids but I guess not always. So all liquids have to have a thickening agent added. Like milk and juice Seriously nasty!! It has to be the consistency of pudding. He has orders to be transferred to a longer term care place. It is a rehabilitation wing of the hospital system he is in (ORMC, Arnold Palmer, Winnie Palmer, MD Anderson and Lucerne are all part of it.) He is going to go to Lucerne. That may happen as soon as tomorrow. So yay! One step closer to going home.

He does know about Matthew now. It was SOOO hard to tell him. The words just would not come out. And it was not how I wanted to tell him. I came in the hospital after going to get him p.j.'s last night and he was crying. I have NEVER seen him cry so I automatically thought he knew about Matt. I asked him what was wrong and he said "They told me" I was like who told you? And then I thought he said about Matt. But it was something about going home. So I was like they told you about Matt? Then he got this puzzled look on his face and said what is wrong with Matt? At that point I knew I had to tell him. So it took some time but I managed to tell him and he took it really hard. It was so upsetting to see him that upset though. But the really hard part was over and now he can start grieving.

He got upset with me today though and told me I should have never waited to tell him and why didn't I tell him the first day. Made me feel truly awful. I started crying and he said he was sorry he didn't mean it. I don't know if he did. I guess it is normal to question why I did not tell him sooner. I explained that I talked to a couple doctors, nurses, the chaplain and a counseler and they all told me to wait until I knew he was ready or until he started asking about him. So he said I guess that makes sense. Regardless of that though I still feel guilty about not telling him before this.

Oh and we found out there is something weird going on with his eyes. He cannot open his right eye all the way and his pupils are kinda funky. One is bigger then the other. The attending physician has referred him to an opthamologist (sp?) and possibly a neurologist. If you cover his left eye and hold up fingers and ask him how many like if you hold up 2 he will say 1. Not the same for the left eye. The doctors did not even notice it. I pointed it out and asked why it was and they were like huh I didnt notice that before. So they did yet another CT scan of his head and neck area to compare to the last one I guess to see if there is something going on but the dr mentioned the tubes he had in to drain the blood off the lungs could cause nerve damage that can effect the eyes. So that truly sucks. Im not sure if it will reverse itself or if it is a common problem.

So while there was some really sucky news through the last days and hard times too overall I am so thrilled with his recovery I can deal with the bad.