Any caregivers here? Looking for some advice...

[zakirahzakaria]

I haven't been active in the forum lately due to taking care of my mom at home. She had stroke in 2014, and since then, she's had multiple seizures at around 6 months' intervals. With each seizure episode, her health deteriorates and now it's been more than a month since her last seizure, but she's still bedidden. For a stroke patient, that's not good

We have a physiotherapist coming every week to help her gain her strength back, but her progress is very slow. Her right side was affected during stroke, and the seizures that came after it seemed to be affecting her right side again. She has a few bed sores now, which is very worrying.. I give her sponge baths almost daily, and about twice a week, we'd take her to the bathroom for showers. Transporting her to the bathroom isn't easy, and she doesn't like it and prefers bed baths, but she has to move more often..

Has anyone dealt / given care to a stroke patient before? How do you deal with the patients' emotions? My mom cries a lot, especially when she's in pain during exercises & physiotherapies... I feel tired of facing those emotions and at times, I want to take some time off, but I'm afraid if that would be considered neglect? I haven't taken any vacations since 2013... I could really use some time off now but I don't know how to voice it out to my family. I know they'll let me do it, but I'm torn between self-care & caregiving..