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Old 04-28-2015, 11:05 AM
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Default Well, that didn't go so well

Warning: talking about Eden again. Are you sick of this yet?

Had her EEG this morning and it was definitely no walk in the part. She hasn't had one since she was a baby and they required a lot more participation on her part. She threw up and almost passed out before they even got the thing going. Tech thinks a silent seizure caused it but since the machine wasn't completely hooked up it wasn't able to read it.

GRR.

She cried a lot, it was so sad Nearly refused to cooperate at one point but I gave her the 'you are brave you are strong' pep talk and she recovered a little.

<sigh> Remind me that this is just a phase!
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Old 04-28-2015, 11:13 AM
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Oh Valerie, I can't imagine how hard it must be for Eden AND you!
I'm thinging of the both of you. -big hug-
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Old 04-28-2015, 11:29 AM
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Thanks, hon.
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Old 04-28-2015, 11:39 AM
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Man, that's got to be so tough. I'm so sorry that it's so difficult. Is there anything they can give her to calm her down a bit before these things?
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Old 04-28-2015, 12:12 PM
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poor kid :[ :[ :[ I really hope you guys get some solid answers soon so they can stop torturing her
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Old 04-28-2015, 01:50 PM
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Quote:
Originally Posted by carrie1977 View Post
Man, that's got to be so tough. I'm so sorry that it's so difficult. Is there anything they can give her to calm her down a bit before these things?
IDK, that's a good question though. I'll ask. She just took a 3 hour nap, lol!
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Old 04-28-2015, 02:17 PM
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I'm sorry! I sure hope you get some answers soon.
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Old 04-28-2015, 05:31 PM
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Poor kiddo! I hope that things line up so they can get the answers and get her some peace! hugs!
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Old 04-28-2015, 05:50 PM
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So sorry, Val. Poor Eden!!!
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Old 04-28-2015, 05:57 PM
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So sorry to hear this Val! Poor Eden and you! I will continue to keep you all in my prayers!
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Old 04-28-2015, 08:23 PM
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So sorry to hear that, Val! Hoping they figure out what's going on asap. ((hugs))
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Old 04-28-2015, 09:54 PM
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I'm sorry it was tough. My DS has had a lot of tests like this that thankfully aren't painful but are very stressful and scary for little guys. And I don't know if your DD had to be sleep deprived for her EEG, but my DS did and that makes it so much harder on them. I hope they at least get some answers from it for you!
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Old 04-28-2015, 11:43 PM
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oh my goodness. I hope this gives the answers you need. I feel so bad for her. ((Hugs)) for both of you
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Old 04-29-2015, 01:41 AM
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That is so awful. I'm so sorry for you guys! I agree with Carrie and wonder if there is something she can do or take beforehand so she doesn't go into this much distress? Poor thing!
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Old 04-29-2015, 03:02 PM
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Poor eden, hope you get some answers soon.
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Old 04-30-2015, 01:41 AM
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Oh man poor thing Medical stuff can be super scary! I hope you get all the answers you need so she doesn't have to go back and do it again!
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Old 04-30-2015, 02:31 AM
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I hate hearing that...poor thing!!! Give her hugs from all her cyber friends...
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Old 04-30-2015, 08:24 AM
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You know, I've been thinking about the anti-anxiety medication option, but I bet the dr's wouldn't agree with it. They are able to actually learn a lot about her brain because she was experiencing so many different emotions. They were able to see when she started crying and when she got dizzy. Isn't that weird! Kinda cool, but still difficult to experience.

We found the cardiologist we want. Dh has a connection with a dr. at work who said she is one of the best ped cardiologist he knows, so that makes me feel better. We don't want to see cardio we saw last summer because we want another opinion.

I'm so glad you guys care. This has very frustrating for me. She has been increasing in depression and anxiety from all that has been going on for the last 12 months or so. Right now she is barely leaving the house. I have to make her get out.
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