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  #1  
Old 05-31-2008, 09:06 AM
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Default PLEASE Pray for us!

And if you dont pray any positive thoughts are so appreciated!!

As some of you know my daughter has Juvenile Rheumatoid Arthritis. She was diagnosed at two years old. They put her naproxen and it didn't do anything so they stepped up to methrotrexate. When that didn't do as much they put her on prednisone as well. Finally they put her on Enbrel as well. Don't get me wrong I try to put faith in her doctors but I always felt like this was WAY to much medication. I did some research and found that these meds could do serious damage to some of her internal organs. She is now six years old and I am afraid we got some bad news at her last appointment. They send her in for regular blood testing and such and they are concerned she may have liver damage as a result of the methrotrexate. We find out June 5th either way and as the appointment approaches I am sick to my stomach!! I am so scared. Please just keep her in your thoughts. I am a firm believer that prayer works and I am trying to keep faith that we will get good news. This poor kid has been through so much in the four short years she has had to live with this awful condition. They did pull her off her meds until we know more and now shes flaring and having an extremely difficult time getting around. I am just desperate.

Thank you so much ladies.
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Old 05-31-2008, 09:08 AM
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Oh my goodness Im so sorry. Your poor little girl.
I will keep her and your family in my thoughts.
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Old 05-31-2008, 09:09 AM
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(((Sarah)))) ((((Lily)))) Sending some prayers up for you She's too young to have to go thru all of that
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Old 05-31-2008, 09:10 AM
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Poor little thing and Mama too!!! will definately keep you in my thoughts and prayers!!!
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Old 05-31-2008, 09:10 AM
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How awful! I will pray.
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Old 05-31-2008, 09:29 AM
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Awww, poor thing! I'm saying many prayers for you and your family!
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Old 05-31-2008, 09:29 AM
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Oh, Sarah! That just breaks my heart. I'll definitely keep her in my prayers...and her doctors, too!
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Old 05-31-2008, 09:34 AM
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Sarah, I'll keep all of you in my prayers!
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Old 05-31-2008, 09:38 AM
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Oh, Sarah, I'm so sorry! Sending lots of good thoughts and good vibes your way.
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Old 05-31-2008, 09:40 AM
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Awww my heart is just hurting for you all!! It's so sad when anyone suffers from debilitating diseases but it's just so much worse when it's a sweet innocent child!! All my positive thoughts and prayers are coming your way!! Please keep us posted!!!
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Old 05-31-2008, 09:45 AM
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I'm sorry as well. You're in our prayers for good news.
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  #12  
Old 05-31-2008, 09:46 AM
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Awww, poor baby! Sending lots of healthy vibes her way! (((hugs)))
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Old 05-31-2008, 09:48 AM
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Aww poor baby, she'll be in my thoughts!
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Old 05-31-2008, 10:20 AM
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I'm SO sorry to hear that Sarah!! I am sending positive thoughts your way!
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Old 05-31-2008, 10:34 AM
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Thinking of you and your daughter sweetie, poor kid xx
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Old 05-31-2008, 10:34 AM
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How scary for all of you! I'll be hoping that you'll receive good news at her appointment!
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Old 05-31-2008, 10:39 AM
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Ohhh NO SARAH!
My prayers are heading up for you and Lily right now!
HUGS girl!
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Old 05-31-2008, 10:43 AM
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This just breaks my heart! I'm praying hard for her.
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Old 05-31-2008, 10:44 AM
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you and your little one are in my thoughts & prayers. (((hugs)))
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Old 05-31-2008, 10:58 AM
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I am sorry you are having to go through this. My best friend has rheumatiod arthritis and it is just awful. Is there anyway they can just give her the prednisone to relieve her pain and swelling? I cannot imagine her not being able to take something for the pain.

I will keep you and your famiy in my thoughts.

Susan
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  #21  
Old 05-31-2008, 11:03 AM
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Sarah - I am so sorry! I'll be prayer for you and that sweet girl of yours.
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Old 05-31-2008, 11:03 AM
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Oh wow...(((hugs))) to you and your daughter!! Methotrexate is NASTY stuff, Mason was on it for 2.5 years as part of his chemo. I don't have any advice or anything, but I'm definitely thinking of you guys!
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Old 05-31-2008, 11:07 AM
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Hugs and prayers from me too, sweetie.
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Old 05-31-2008, 11:15 AM
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Oh Sarah, tons of prayers that you don't get bad news! HUGS!
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Old 05-31-2008, 11:18 AM
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That is crazy! I'll be praying!
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  #26  
Old 05-31-2008, 11:18 AM
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Oh Sarah, I'm so incredibly sorry. I can only imagine how difficult that must be for you to have to watch your baby in pain. Poor girl! I hope her doctors are able to find something to help keep her out of pain and something that won't hurt her other systems. (((hugs)))
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Old 05-31-2008, 11:29 AM
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Honestly, anything that is "manufactured" can not be good for anyone. I hate taking any type of medication, but sometimes you just have no choice.

YOu are in my thoughts and prayers!!!

I would like to point you in a direction of something that may help you. Check out this site: http://www.xango.com/

If you are interested, let me know, My husbands aunt is a distributor and they sware by it. We don't use it, as we really don't have any major health problems, as of yet, but it doesn't hurt to try it, as it is all natural!!

PM me if you have anymore questions, and I will get you in touch with my DH's aunt,

God bless,
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Old 05-31-2008, 11:42 AM
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oh Sarah, I'm so sorry. ((hugs)) I hope the doctors find a way to deal with her condition in a safe way. She must be a real trooper to be dealing with this. I will certainly pray for her and for the wisdom of the doctors. ((hug))
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Old 05-31-2008, 11:45 AM
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oh poor sweet girl she's in my heart sarah!
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Old 05-31-2008, 11:45 AM
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Iam so sorry Sarah. I am so sorry that your daughter is having to suffer in this way. I will be praying for her and your whole family.
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Old 05-31-2008, 12:00 PM
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Many positive thoughts coming your daughter's way! I really hope that you get good news on the 5th. It's just heartbreaking.
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Old 05-31-2008, 12:03 PM
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oh goodness I am praying, and adding you too our prayer list!
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Old 05-31-2008, 12:07 PM
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Oh bless your heart Sarah!! I am so very sorry!!! I will keep you all in my prayers! I can imagine what you must be going through. I'm praying for good things for her!!
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Old 05-31-2008, 12:12 PM
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Lots of prayers coming your way...poor sweetie pie...So young to have to endure something so painful.
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Old 05-31-2008, 12:13 PM
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Oh, I'll be praying and sending lots of good thougths your way!!!! Hopefully you get some good news at your appt!!!!!
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Old 05-31-2008, 12:45 PM
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So sorry, Sarah. Unfortunately, it is not uncommon with some of those drugs to get liver damage - my husband has to be tested for liver damage every six months because of the drugs he is on. I can only imagine the effect on a child's body. I would suggest, regardless of the results, that you try to research more homeopathic/natural remedies if you haven't already. The Xango mentioned earlier is something that my chiropractor suggested - it tasted a little weird when I tried a sample but it is sweet. But I don't know how legitimate the claims are, so I won't go promoting it here.
I do know that when I was diagnosed with fibromyalgia, there were a lot of medicines suggested but I ended up having stomach issues with some of them (I can't take anti-inflammatories). I found a lot of research regarding changing the diet and other natural remedies, so I imagine the same is true for rheumatoid arthritis, since they present similar symptoms (though they are different disorders).
I really hope she doesn't have any damage, so my thoughts and prayers are going out to she and your family....
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Old 05-31-2008, 01:04 PM
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Oh Sarah honey! I know you're terribly worried and I can't imagine all the fears running through your mind right now. I will be praying and hoping hard for your sweet Lily..that she weathers this flare up as she always has with grace and strength; that you receive good news on the 5th; and that she improves with every new day. Honey, sending ((hugs)) and all the well wishes I can muster.

I know you all are so strong, but always remember that you have the support of those who care about you!
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Old 05-31-2008, 01:08 PM
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oh how scary! I hope her liver is fine. Sending healthy and positive vibes.
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Old 05-31-2008, 01:37 PM
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Oh no Sarah! I am so sorry about your news! I will def keep your little beauty and fam in my prayers!
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Old 05-31-2008, 01:38 PM
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Oh, Sarah. I'm so sorry hon. Nothing in this world is worse that watching your child hurt. Your family and especially your daughter are in my prayers. Keep the faith hon and take it easy.
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Old 05-31-2008, 01:41 PM
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Awwwwwwwwwwwww SARAH and LILY...please know my thoughts, prayers, hugs and kisses are you with you continuously. I pray God will open doors to help your daughter through all this, poor baby!
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Old 05-31-2008, 01:50 PM
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Oh Sarah I am so sorry!! I hope that everything turns out okay!! My prayers are with you and your daughter. That's the scary thing about methotrexate...I was diagnosed with RA 7 years ago and I was on methotrexate and they always had to do blood tests on me to check to make sure there was no liver damage. I stopped taking it when I decided to get pregnant with my daughter and thought the RA would be unbearable...it never came back. I pray pray pray that your daughter's RA doesn't last forever. Please keep us posted!! Big HUGS!!
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Old 05-31-2008, 01:55 PM
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Oh no Sarah, I'm so sorry you are going through this, I can't imagine how scared you must be! Sending P&Ts for you and your family and your precious daughter. Big hugs and please keep us updated!
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Old 05-31-2008, 02:07 PM
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Many hugs to you! I'll be praying for y'all!
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Old 05-31-2008, 02:08 PM
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oooh Sarah honey.. huge hugs. I am so sorry you and Lily are going through this. You all will be in my thoughts.
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Old 05-31-2008, 02:11 PM
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Oh no, poor baby. that is really heartbreaking to hear what y'all are going through. I will be praying for you.
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Old 05-31-2008, 02:15 PM
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Definitely praying, Sarah!!!!! (((HUGS)))
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Old 05-31-2008, 02:45 PM
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Sarah... my heart goes out to you! From what you have told me all about Lily she is a tough little girl even though she is fragile. I know that with her spirit and all your love you will get through this no matter what the outcome. You are in my thoughts, heart and prayers!
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Old 05-31-2008, 02:48 PM
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How terrible Sarah! I will be keeping you guys in my thoughts and hoping for the best for you. {{{{HUGS}}}}

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Old 05-31-2008, 03:21 PM
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Oh Sarah I am sending so many prayers your way!!!
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